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CDVS Workshop: Sharing Human Participants Data: Challenges and (Potential) Solutions


Jen Darragh

The sharing of research data has become increasingly important to federal and private funders and journal publishers for a number of reasons (research transparency, reproducibility, return on investment, new research on existing data, etc.). With the latest requirements coming in 2023 from the National Institutes of Health (NIH) for Data Management and Sharing Plans (, there are legitimate concerns about how data from human beings can ethically and safely be shared. This workshop will talk about the various challenges that arise when considering how to share human participants data in DMSPs and potential ways that these challenges can be addressed, and even solved, with resources available at Duke and beyond (data sharing consent language, controlled access repositories, de-identification help, etc.). While services and help resources are still evolving at NIH, Duke and in related professional associations and academic discipline groups, you are not alone in determining how to share human participants data the right and ethical way. This event is open to non-Duke participants.


Research, Technology, Training, Workshop/Short Course